When the phone rang on Tuesday and I heard the neurologist, I knew. Just like I knew when he was fighting for a life of his own in my uterus. Just like I knew when he was born and I told the Dr something was wrong and even within the sweetness of his face I knew it wasn't right. Just like I knew as he endured every surgery and hospitalization that he has fought through. But Tuesday I was given the words that I had known in my heart from the time his tiny body and soul were entrusted to us. Robert has both an extra chromosome and is missing part of a chromosome. That is all I can share for the time being. I'm at peace with this knowledge but our lives will never be the same again and we are being hurtled from medical test to medical test. Although it's frightening there is no longer a scary monster lurking in the dark. We know what we are facing and it's going to be ok. Love is endlessly bigger than one extra chromosome no matter how eccentric it may be. xoxo Agnes
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8 comments:
Hi Agnes,
I'm so sorry to hear of your news although sometimes it can help to know what is wrong.
There's no words that could help your pain, just love and prayers sent to you and your family. Natasha xxx
Thinking of you and your family, daily.
Agnes sending hugs from Calgary..having gone through autism diagnosis with our son...I've been there and can only tell you that your new normal will eventually .bring you joy in ways you never know I know it hurts like mad right now.... but the man upstairs has a bigger plan and one day we well understand it was to make us better more kind patient humble loving people. Your son will affect so many for good. Keep your chin up...its OK to be mad and sad and angry and will get you through the grieving process. You are one strong woman and there's a reason he was sent to you.love Bree cocorosecouture
Hugs and prayers...
I've followed your blog for a while now and not commented before I don't think. I just wanted to say that us readers are all thinking of you and you family and wishing for the best. x
I wish there were words to express how deep my understanding goes. Tonight's Mass will be for you and the baby.
hugging you all xxxooo
Agnes I wish a lot for you, as a mother, I amvery sad that your little boy has this very big so little problem. You are facing it, just know you are going to need support.
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